Monday, June 3, 2013

Our Crazy Wonderful Life.

I suppose I should write for all our wonderful readers since I haven't updated in quite a while. We have been so busy!   The last time I wrote was the day after Owen's first birthday! Since then we have had a lot go on. 

After Owen's birthday he was struggling with a cold, ear infection, and double eye infection that resulted in Owen and I having our first ride in an ambulance down to Children's Hospital, where we spent 2 days.  In those two days, Owen refused to let Kevin put him down, so being the wonderful daddy he is, he endured 48ish hours of holding our sweet 19 pound miracle baby.  It was tough, because it was only 2 days before Owen's first birthday party! The first day we were at the hospital we struggled trying to decide what to do about the beautiful party we had scheduled.  We ended up going about everything as if we were still having the party.  I ended up doing  a lot of organizing and delegating to our close friends and family while in Milwaukee to make sure that the last details were ready.  

We went home the next day(Friday) and decided to still have Owen's birthday party since we did pay to rent out a room at our local community center.  It turned out to be a beautiful day with our close friend's and family.  Owen's physical therapist, Joe, even brought his family along! The love for our sweet, little boy was definitely apparent.  

Since then we have been working on getting Owen's Eczema under control, it has been quite stubborn! Since his birthday party, Owen has figured out how to climb up almost every piece of furniture in our living room.  He is definitely keeping us on our toes! We have been enjoying the warmer weather too! We purchased a sandbox/table for Owen to play with this summer and a swimming pool! We can't wait for it to warm up even more so Owen can splash around in his little pool. :) 

Wednesday, April 3, 2013

Owen's First Birthday

I sit here before my laptop trying to think of what to write.  The past few days I have done a lot of reflecting on the past year, okay, the past year and 9 months.  Kevin and I became pregnant right out of the gate of marriage (I guess that's the best way to refer to it).  We weren't really trying, but not preventing and we surely didn't expect to become pregnant right away.  All of that aside, we were excited for the chance to bring a sweet little baby into this world and to nurture and raise our child to the best of our abilities.

I think about the people we were before Owen was born and realize we have grown so much in a short period of time.  We went from being newlyweds that a lot of people wondered "How did they come together" to a complete unit.  A friend of mine said it perfectly today.  Kevin and I have grown into a unit, we move together and are synchronized beyond belief.  With a child like Owen, that is a requirement.

It really is a case of make it or break it when you have a child with a congenital heart defect(or any other serious health issues).  There are many parents that end up splitting up because of the added stress of having a special needs child, but I can honestly say it has brought Kevin and I together.  I feel like this journey we have been on with our sweet and sassy Owen has strengthened our marriage and we are prepared to take anything thrown our way.

Being able to reach the milestone of Owen's very first birthday has really shown us how blessed we are.  Before Owen was even born, we were told by doctors "If you make it through the first year, it is smooth sailing."  This past year has been the most difficult year of our lives.  Facing two open heart surgeries, three hospitalizations, numerous visits/drives down to Children's hospital for treatments, multiple echos, hundreds of thousands, if not a million dollars worth of medical treatment/care, hundreds of baby aspirin tablets, constant recording of daily intakes and weight recordings, Owen refusing to drink bottles while awake, Owen flat out refusing to take bottles, trying to find creative ways to get Owen to drink bottles to maintain proper fluids, and everything in between.  We have been trained in CPR and how to spot heart failure without machines, as well as how to draw up medications and make higher calorie formula concoctions. We are super parents for sure.

Owen has come so far in the past year, you wouldn't even notice he has only half a heart!  He is the most amazing child I have ever encountered, and yes, that could be a bias statement, if you didn't think it also!  Our sweet little man is finally 1, the age I have been counting down to in my head for months.  On difficult days I would think and repeat to myself "only___ months until he is 1".  It feels like we have been running a year long marathon and have finally reached the finish line.  We are loving this less stressful finish line. I just can't believe it. Owen is 1.  Finally.  I can't believe the amazing little boy our baby is turning out to be.

Watch out world, because Owen is going to grab you by the horns.

It's hard to believe that our little smurfy looking guy was once so tiny!

Thursday, March 28, 2013

Coming close.

It's coming everyone.  Owen turns 1 on Tuesday.  I know I haven't updated in a while, so I figured it is about time to do so.  We have been very busy the past few months.  Owen has been mobile and is crawling EVERYWHERE and getting into everything!

 In mid-March, Kevin and I took our first trip away from Owen.  Owen spent a few days with his Aunt Rebekah and Uncle David (his godparents).  He absolutely loves them and their furry animals(they have a cat and a dog, both of which he was calling Bear while he was there).  Kevin and I drove to Nashville and stayed at the Opryland Resort.  It was absolutely gorgeous and we had a nice relaxing vacation. Plus escaping the snow and cold weather was nice! It was 75 degrees in Nashville when we were there! 

When we came home, I caught a cold that has been kicking my butt and I've been trying my hardest not to give it to Owen, but of course, he ended up catching it.  Last Friday I took him in to the pediatrician and she told me to just let it run it's course and there isn't much we can do for it.  Saturday we went to my grandmother's house for Owen's FIRST Easter! We had such a fun time and my aunt Sue even planned an "easter egg hunt" for Owen (she filled easter eggs with coins and m&m's and scattered them around the floor).  It was so cute to watch him crawl up and shake or throw the eggs.  

This coming weekend we have two more Easter celebrations.  Saturday we are going to Kevin's grandmother's house and Sunday we have the huge Krajnik celebration at our local Vets club. Sunday also marks the day that I was induced with Owen and spent the following 39 hours waiting and waiting (in agony of course) for him to make his grand entrance.  

All this being said, I would like to touch on the subject of Congenital Heart Defects.  Recently, Parents Magazine has published an article(I think it was only on their website) about CHD's, it's entitled "Mending Broken Hearts".  The article was informative until you reached the section called "Preventing Heart Defects." I am sorry, but everything they say in that section is completely inaccurate. I know many, many, MANY heart moms that took prenatal vitamins and followed everything by the book (myself included) and still ended up with a heart baby.  For the article to state that taking prenatals can prevent heart defects is a terrible lie.  Here's the scoop.  In most cases, there is no definite answer where or how the CHD came about.  There is research going on trying to figure that out, but until then there is no way you can claim that heart defects can be prevented by taking a simple multivitamin.  

As a heart mom, I am constantly under the microscope and asked things like "Is it a genetic defect?" or "What did you do wrong?".  I didn't do anything wrong, and I have to tell myself that every day because I feel guilty and I will probably feel guilty for the rest of my life.  When you find out you are having a child with CHD, it is earth shattering, I've also heard people say you go through stages much like the stages of grief.  I completely agree.  The stages are much like the stages of grief.  You're grieving what your child will not be able to do and what they will face every day, every minute, every second for the rest of their life.  Since we found out about Owen's heart defects there have been times where I was in such a dark place that I didn't want to do anything but lay in bed crying and feeling Owen kick.  Now I am not trying to scare everyone, I'm just sharing the truth of what goes on "behind the scenes" of having a child with a heart defect.  I must say in a years time, we have grown so much and been through so much.  We have had major accomplishments, terrible setbacks, and everything in between, but we were able to get through it as a family.  Owen is our whole world and life would never be the same without him. 

Despite having had two open heart surgeries, a few hospital stays, and a cardiac cath in the past year, we are excited to say Owen's physical therapist, Joe, recently told us that Owen's development is right on track and he is testing at an 11 month old level! Also, I purchased our LAST can of formula last week. :)  (I can't wait to say this about diapers!)  And now for a few pictures! 

(Also notice how great his skin looks! We saw the Dermatologist and he was diagnosed with Eczema and we started a regimen of creams/ointments and it cleared right up!)

He normally enjoys this! We managed to get a set of awesome pictures to torment him with when he is older! :)

Friday, February 15, 2013

Saturday, February 2, 2013

Little Reid!

Today's heart warrior is Reid! He is so adorable and only 4 days older than Owen!! He has the same heart defects as Owen and was diagnosed at 7 months old! Absolutely a little miracle! Check out his facebook page for pictures and his whole story! Trust me, he is very very cute so the pictures are worth it!

Friday, February 1, 2013

Tiny SuperHeroes

I'm so excited to write this blog. The past week we have had a huge abundance of likes on our Owen's Cloud Facebook page,, and I have had several new "fans" send us private messages one of which I am going to share the contents with you now!

We were contacted by a woman, Robyn, who is part of an organization called Tiny SuperHeroes. They make personalized capes for kids with health issues to help empower them! She offered to make one for Owen and to feature his story on their blog! I also wanted to mention that this month they have a special sale going on where if you buy one cape from their online store, they are able to give a cape to a special little boy or girl! These capes are so adorable and they even make them for dogs. We are thinking of purchasing one for our beloved Bear.

Here is the link to their blog:

And here is the link for their online store:

Consider donating to this AMAZING cause! :)

Congenital Heart Defect Awareness Month!

Today is February 1st, I'm sure you all know that. The month of February is Congenital Heart Defect Awareness month.  So all month on our Facebook page, we are sharing different heart warriors and their pages/blogs.  Feel free to show them some love this month!!

Our little warrior today is Carson. Sweet Carson was born in November with Hypoplastic Left Heart Syndrome. Sadly he joined his fellow heart warrior angels last Tuesday.  Send them some love in this difficult time.

Sunday, January 13, 2013

Much needed photobomb! :)

Well here is the mother of all photobombs! I hope you thoroughly enjoy all these fun pictures! I finally figured out how to get the pictures from my phone to the computer. :) Don't worry I kept the pictures with Owen's "wee-wee" exposed for ourselves! 

Watching TV

Going for Bear's Toy









First time w/ a sippy cup



Painted this for Owen's room

Sitting w/ Grandpa
Just chilling














Doggy sitting

Cali doesn't know how to sit in the car. Yes, her butt is on Owen's carseat.

Getting ready to crawl!


Licking Mommy's kindle



Can't forget one of our silly Bear!


Had to share, this porkchop looks like a heart!

First time he fell asleep in the high chair
Playing in the bin!






Back view
Front view







Scrambled eggs and toast for breakfast





Blog Template by